Friday, June 22, 2007

6 Week Lab Results (It's now week 8/48)

As you can tell, I've not been very good about keeping the blog updated. It really only is due to the prodding from my 2 treatment buds, KennyG and TerryL, along w/the news of my vl, that I was able to get my butt in gear and give you an update.

It's just that with feeling so tired, along with doing stuff with my 8 year old and trying to keep the household chores down, I'm finding little leftover energy or enthusiasm for posting or reading on the computer :) I do keep up with my blogging buds and try to read a bit of the forum (that is getting overwhelming - so many posts).

I'm trying though...so here are the lab results from my 6 week visit (plus the prior wks - beginning, 2 and 4, for comparison).

HGB - 14.1 - 11.1 - 10.6 - 10.3

HCT - 40 - 33 - 34 - 33

RBC - 4.5 - 3.7 - 3.5 - 3.2

WBC - 6.19 - 3.45 - 2.78 - 3.21

NEUTS - 3.41 - 1.45 - 1.36 - 1.58

PLATELETS - 335 - 293 - 326 - 274

VL - 10.8 mil - 1.5 mil - 7,910 - 1,530

So there ya have it. Of course, I was hoping for undetected, but I guess this is still okay....maybe after next week's lab I'll get that elusive number!

I've been having a couple of new sides that I thought I'd share. One is regarding the inteferon shots. I'm still not having any of the typical flu symptoms. My reaction last week (7th jab) was that the first afternoon feeling more wiped that usual, then the following day all my body muscles (especially in my shoulders and legs) clenched up tight as a tick. This, in turn, caused a tension type headache that I could not get rid of for about 24 hours. I tried extra strength tylenol, motrin, body massager/cushion, hand-held massager, and a soak in our jacuzzi tub but nothing was touching that sucker. I finally thought to take a xanax and maybe that along with everything else, finally began to loosen my body up.

I also had my dermatologist appointment this past week. She thinks the itchy bumps along my collar bone, shoulders and along my hairline and a few places in my scalp are related to these meds. Doesn't really look like a 'rash' just because I think of a rash as being closer together. These are spaced out....whatever it is, she gave me a rx for an anti-itch, anti-steriod cream called triamcinolon, which seems to be helping.

Also, she took a look at some patches on my face and they turned out to be old sun damage - again - actinic keratoses. The stuff she rx'd for that is solaraz and costed a whopping $164 (and that is with my rx discount of $40 off the top!). Luckily, we get another reimbursement after sending the receipt in to the insurance company but still...I'm blown away at the cost of drugs today!

Oh, also I have to make an appoint for minor surgery w/ her to try to get all of the basal cell carcinoma she discovered on my back. It will require carving a notch out of my back and stitches, but I know I need to get this taken care of. I guess now is a good time to do it as my platelets and wbcs should still be good for the healing process if I get on the ball and do it soon.

The last thing, is I'm feeling very parched inside and out although I drink lots of water and other liquids and am trying to be vigilant with lubing up my body :) Heard it The Body Shop's Shea butter is nice for this, so will see if I can get over to the mall next week.

Yesterday was shot number 8. I felt fairly well this morning and played in the pool with Em until around lunchtime, being sure to stay in the shady area. The pool is so wonderful when you're feeling so tired and weak - the water helps you feel refreshed and weightless - lovely! The sun chased us out around noon so we headed in for lunch. We'll get back out there this afternoon when the woods throw shade on the pool. ARGH - it's been hard to go from a sun worshipper to a sun avoider!

I was feeling pretty darned good and thinking/hoping that last week's muscle clenching reaction might have been a fluke -- but no such luck, darn it all! During the making of lunch, I noticed my muscles tightening and the headache creeping back in :( I've taken some tylenol and 1/2 xanax and am going to go lie down for awhile while Em watches Liberty's Kids :). She's pretty patient with me on the day after the jabs, my little nurse, but she's telling me she's going to wake me up in an hour so we can read some more in the book I've been reading aloud to her (Avi's Poppy series - soooooo good :) so I best not waste my nap time any longer :)

Oh, I did want to mention that Em's birthday party a couple of weeks ago was lovely and everyone had such a good time. It was like a hundred degrees so we quickly decided to move it indoors, which I'm sure made all our guests very happy :) I'll try to get it together to download some piccies from the afternoon soon.

I did have a lovely surprise a couple of days before the party. I was stressing a bit about getting ready for the party, the cleaning, the errands, the cookings, etc., when a very dear friend who moved away following Katrina popped in and after a few tears and hugs, started cleaning our house. I was so very touched! She had flown into the city from VA for a board meeting and called me in route to my house and told me her plans.

I feel so blessed to have this wonderful woman as a friend. Not too many people around these days who would come over and do all she did - even cleaned up cat puke from my poor dying Melee. When she left a couple of hours later, she'd also left a turkey breast in the oven roasting for a delicious dinner. Amazing and lovely woman! Love you, Jeanie!!

I saw it mentioned on another hep c blog that their early support seemed to fade fairly quickly during the long treatment time. I can see this, too. I was telling Kevin (dh) a couple of nights ago...I'm sorry if I seem to talk about it so much. The treatment is so all-encompassing while you're involved in this....watching to see what is going to happen to your body, waiting to see if all of it is going to be worth it. I find myself trying NOT to talk about it as much despite the fact that I do think about it a lot.

There's a thing in the South, or maybe it's everywhere... where when most people ask how are you doing, they're really just to trying to make 'polite conversation'. They probably don't want to know 'too much'...like me going into details of 'the symptom of the week', for example *smile*, and most of them don't understand the blood work so they get this kind of glazed look on their face :) They'd much rather hear something simple like, "Oh, I'm doing fine" and then move onto other more 'pleasant' things - LOL. This is what I've found with my 'local friends'...not so with most of my 'long distance' friends. But then, I think a lot of people down here are still suffering from PTS post Katrina and are still in that 'self-preservation/survival' mode, so are understandibly still preoccupied with their own lives.

The treatment is going to be going on for a long time (40 more weeks!) and I guess it does get old to some people pretty quickly. Well, or I guess, you just find out pretty quickly the ones who are genuinely interested and are willing to give you a moment of their time to offer support and compassion during this time in our lives (those undergoing HCV treatment).

I have another close friend, Ellen (from WA state), who has called to check on me and chat with me at least once a week. She's another one whom this has shown me, can be counted on and I just wish we lived next door to each other! As a close friend, a compassionate woman, mother, and fellow nature lover, El just blows me a way constantly! I'm so glad you're in my life, Ellen!

On another note, like the wonderful Mr.T said, this whole process is also bringing many good things, too. It's funny to have such brain fog, yet at the same time be able to see some other things with a new clarity. Very unexpected but welcome :)

Again, this post seems all over the place, so hope you can make sense of it all :) xxxx

8 comments:

uncertain4sure said...

I'm impressed that you can write so much! And take care of a child! The sun thing - I know, I've had 2 basal skin carcinomas removed, glad your platelets are holding. When does S/P get you the Procrit? Technically, you're anemic.

Terry Lee said...

Your VL looks great to me! I'll settle for that at 6 weeks. I'm getting the Cooties on my head too. The GP gave me some steroidal cream so we'll see how we do. I scored moderate depression on my psych test yesterday so today I went to the Med psych and they recommened doubling up on the prozac......Happy day!

Denise said...

Hi Un - Ya know, I'm beginning to think they really don't want to presecribe it. They were talking the other day about dose reducing (before even mentioning procrit). I'm gearing up for a fight about that if they don't shape up :P

Hey T - Hey so they are sending you to a separate dr for the anti-ds? I sure had thought they would be handling all the sides through their office vs running us around to specialists.

We lost a lot of drs here after the storm... the few Psychiatrists that are left in N.O. are all PACKED - it's hard to get in. My nurse mentioned that over 1/2 of the city are on anti-depressions now, and that many more needed to be cauee of PTSD/depression. I guess I just need to go ahead and make an appointment since it'll probably take weeks to months before I can get in to see anyone!

I had thought my hep dr. would take care of this for me...I still might ask them to try again to help me find something that will work.

Terry Lee said...

I'm getting "Gold Standard Care" every 2 weeks I am given a depression test. The one on Thursday scored me at 23(moderate depression), that was up from 8 & 10 the prior weeks. They couldn't get me to the shrink fast enough. shrink said that with the symptoms of weight loss, lack of ambition, fatigue and brain fog that he like to see me go to 40mg since I have to go 48 weeks. There are a lot of mixed opinions about the ad's but all my doctors(3) believe that they need to be prescribed if needed. Let's face it, John Wayne is dead, no more silly heroics for me. Hugs T

Deborah said...

You've been ever on my mind girl. Just catching up with where you are at now. I'm so happy that the effect seems so very worthwhile. Sure that you'll get that non-detectable by the end of your trial.

I am listening to The Great Deluge by Douglas Brinkley on a recorded book CD. Probably not something you are ready to go back into so deeply but for me - having visited you in your rural home, having gone down to the tip at ocean's edge, having gone to the French Quarter and most especially visiting the Miss Beach with you and the Kevin's family beach house and eating lunch at Bay St Louis, it is just all so immediate. The depth and human stories he shares are so moving. He was a New Orlenian (?), not sure if he still is or not. The history, the environmental aspect/wetland issues, the politics, the mind set of the people. Absolutely riveting and fascinating.

Perhaps remembering (how could you forget anyway?) makes the side effects seem much more manageable in contrast to having survived the "big one" Katrina, at least I hope so. You are in my mind, heart and prayers.

All the best,

Debbie

uncertain4sure said...

Don't let them reduce your dose, you're so close to undetectable - fight for the Procrit. I have major reservations about the validity of this entire study - so many different arms, people starting at different times, different standards of care. You're not doing this for science - you're doing this for you. (S/P is doing it for $$$!)

TeaStarWitch said...

Oh, Denise, I'm so sorry you are having side effects, it makes this treatment so much more difficult.
For dry skin I use Aveeno moisturisers and if it's really bad, then I add body butter too. And you know what helps me too? Every morning I take different oils in capsuls like Fish oil, primrose oil, Vit E, a lot of olive oil and want to start flex seed oil too.
Friends get disappeard, that's true, they get bored with us : (
WIshing you all the best.
Hugs to you and your daughter

ellen said...

Awww Denise, you are so special to me and I am only too happy to support you thru this. You have been there for me thru so much in our years together....I am glad I can give a little back to you. You got me for the duration girl. :-)

Love you,
El