HGB - 11.1 (was 14.1 prior to txt). The low end of normal is 11.6, so this seems like a very quick drop for just 2 wks, but maybe it's normal??
HCT - 33 (was 40)...again, low normal is 34, so I'm on the very edge on this one already.
RBC - 3.7 (was 4.5). Low normal is 4.1
WBC - 3.45 (was 6.19). Low normal is 3.80
Neutrophil - 1.45 (was 3.41). Low normal is 1.96
My viral load went from 10.8 million to 1.5 million during the first 2 weeks of treatment. Next thursday they'll do the 4 wk testing and that is what I really want to see. I don't really know if this is a good drop, average or not that good????
Can anyone tell me what you think of these numbers? What are the 'too low/alarming' numbers during treatment? How low can we go before it's dangerous and might need the rescue drugs (procrit for red blood cells and epogen for white blood cells, or something like that)? I'm so happy that Schering has agreed to pay for them as needed as I heard they are extremely expensive...Someone mentioned $3k per shot - don't know if that is in the U.S. or the U.K. but still....man!???? Ugh - maybe I'll level out instead on continuing to spiral???
The nurse who gave me the numbers (Margee) told me that it was very important to NOT over exert myself with these numbers....to take it easy and rest. Now I know why I've been feeling so incredibly wiped out, I guess ;)
But, still...all in all, I don't really 'feel bad'...just really tired, so it's still very doable. LOL - I guess having the awful nausea and headache was a blessing in disguise 'cause now I've got that feeling to compare this one to :)
Oh, and I had a pretty nasty run-in with a potato peeler 2 days ago (cut it all the way to midway my fingernail and it bled like the Dickens!), but amazingly it is healing very quickly, so I thought that a very good sign, right?
I've been a little concerned reading reports on the forum about how they're now finding that the virus can be undetectable (following txt) for YEARS and then CRAP! resurface and begin replicating all over again. That is so discouraging :( It all made me wonder if the percentages of success are really accurate then? I mean how long did they follow these people to get those percentages....seems to me the ones I read about mentioned only 1 year or maybe 2. It seems some people are relasping after a longer time than these studies? With the genotype 1, we're only going in w/ a 40% chance, or there abouts. What does this all do to that success rate??? How low is it really??? When will they figure this %^& OUT??
And then there is that post on the UK forum about this particular study I'm involved in. Apparently the person didn't respond and they've told her that the protease inhibitor has made the virus mutate... and now it's even more resistant to further treatment. There IS no treatment she can do at this time that would be successful :( This is all very worrisome :(
If I am undetectable at 6 months of the combo txt, then I'll just continue the course (but now it seems it can resurface up to several years...so you live in that limbo for quite a while, even with an undetectable status...you are not home-free :( However, if the virus IS still detected at 6 months, they want to add in the protease inhibitor to the mix for another 6 months. It all makes me wonder what the right course for me should be...what decisions to make.






